Strong-willed Taya Wieler, 2, right, struggles and cries as she receives treatment to keep her lungs clear of a thick life-threatening mucus caused by cystic fibrosis. Her mother, Amy Rovai-Wieler, patiently administers the medicine while her healthy daughter, Teagan, 5, cuddles them. Teagan’s twin, Taryn, also has cystic fibrosis. The pair must receive the 20-minute treatment up to six times daily.
Though the median age for survival for cystic fibrosis is 37, many die sooner. A simple winter cold can kill. To combat the disease, Ravai-Wieler has become an active fundraiser for the Cystic Fibrosis Foundation, which funds research for a cure. She has chaired the Great Strides walk for CFF in Sacramento for years and she founded Couture For A CF Cure, a website that sells handmade bows and other children’s accessories. “It’s added a purpose to everything we do,” she says. “The girls have learned it’s important to be advocates and give back.”